Making the invisible visible

‘Making the invisible visible’ was the title of the spina bifida conference 2018 in Delhi. I took the same title for my talk on the right to life for children with spina bifida and Hydrocephalus because the untreated children are often not reaching the official statistics. It may concern 80% of the cases world-wide. Our contemporary world looks for ways to get rid of our children. Prenatal selection, high cost of treatment combined with poverty, even euthanasia and primary prevention contribute to make one of the most neglected world health problems invisible. Only primary prevention is ethically clean.   And as long as our children remain invisible, funding for treatment, primary prevention and research will be insufficient.It all depends on each other. 
Exclusion, segregation and elimination are ways we cope with what threatens us or what differs from us.  The world mostly turns its headaway and denies pain and suffering. Those who are not involved run away and the person who suffers is …

Honey of high quality

This week in my diary: Ticka, the Kenyan boarding school for children with a disability where we are starting up an orthopaedic workshop. However, unfortunately all the equipment is still stuck at customs and the mission has been postponed until September.

That’s why I decided to go to Mwanza, where we started a House of Hope together with FoCC in January 2018. FoCC stands for Friends of Children with Cancer, spina bifida and hydrocephaly. In the neurosurgical wards, where children are treated for brain tumors, there are many who suffer from hydrocephaly and spina bifida. 
For this reason, FoCC has incorporated our children in their target group.
FoCC has started a day centre and small school in Dar es Salaam which I visited last year. I have invited Walter and Janet from FoCC to attend the Child-Help / IF-workshop in Mombasa in 2017, where we gather every two years with all our partners. I saw FoCC as an example as they undertake fantastic initiatives to find local funding, within Tanza…